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RFK Jr outlines expansive vision for collecting US health data at Maha event
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pelespirit sh.itjust.works pelespirit@sh.itjust.works
Joined: 2023-06-14
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Robert F Kennedy Jr laid out an expansive vision for collecting, sharing and analyzing US health information at a Maha event hosted by a close ally and outspoken anti-vaccine activist.

Medical and lifestyle data, from doctor’s visits to exercise, should be connected and shared with the government and independent researchers, where it can be searched by AI – including potential links between vaccines and health outcomes including autism and mortality, suggested Kennedy, the secretary of the US Department of Health and Human Services (HHS) and a longtime vaccine skeptic.

“We need to use America’s health data to determine whether the food we eat, the chemicals we encounter, the vaccines that we’re administering, the other environmental and lifestyle exposures are contributing in one way or another to the chronic disease epidemic,” Kennedy said at an event with the Maha Institute on Monday, with about two dozen people tuning into the live stream.

The Maha Institute is headed by Mark Gorton, who called himself “the boldest anti-vaxxer in the anti-vax conference” two weeks ago. The institute was co-founded by Tony Lyons, whose publishing house gave $4m to Kennedy through various Maha foundations with funding from political contributions and health-related corporations, according to reporting by the New York Times.

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jontree255 lemmy.world jontree255@lemmy.world
Joined: 2023-06-10
#2 · Quote Reply

“RFK outlines his vision for further eugenics”

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HubertManne piefed.social HubertManne@piefed.social
Joined: 2025-03-13
#3 · Quote Reply

what sucks about this is we do have electronic records needs but not like this. We need a centralized database where by default only the patient and the medical provider who made the notes can view it. Then the patient should be able to log in and add medical providers to those that can view the records as they go to new ones.

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crayons_to_chaos lemmy.world crayons_to_chaos@lemmy.world
Joined: 2026-08-25
Banned
#4 · Quote Reply

what sucks about this is we do have electronic records needs but not like this. We need a centralized database where by default only the patient and the medical provider who made the notes can view it. Then the patient should be able to log in and add medical providers to those that can view the records as they go to new ones.

Its a pretty clear problem to solve, just depends on which priorities are given to you when you design the solutions. Think they'll prioritize patient privacy and outcomes?

2
HubertManne piefed.social HubertManne@piefed.social
Joined: 2025-03-13
#5 · Quote Reply

Its a pretty clear problem to solve, just depends on which priorities are given to you when you design the solutions. Think they'll prioritize patient privacy and outcomes?

no. as I said we have a need but not like he is portraying.

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atzanteol sh.itjust.works atzanteol@sh.itjust.works
Joined: 2023-06-12
#6 · Quote Reply

including potential links between vaccines and health outcomes including autism and mortality

We haven't found a link yet - we need more data!

5
NigelFrobisher aussie.zone NigelFrobisher@aussie.zone
Joined: 2023-08-07
#7 · Quote Reply

The famous scientific method of fabricating evidence to support your conclusions.

5
pelespirit Moderator pelespirit@sh.itjust.works
Joined: 2023-06-14
#8 · Quote Reply

“RFK outlines his vision for further eugenics”

That was my thought as well. They've all dog whistled that part.

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pelespirit Moderator pelespirit@sh.itjust.works
Joined: 2023-06-14
#9 · Quote Reply

including potential links between vaccines and health outcomes including autism and mortality We haven't found a link yet - we need more data!

What are you saying?

2
atzanteol sh.itjust.works atzanteol@sh.itjust.works
Joined: 2023-06-12
#10 · Quote Reply

What are you saying?

They're just data diving - looking to confirm the conclusion they decided was "true" long ago.

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pelespirit Moderator pelespirit@sh.itjust.works
Joined: 2023-06-14
#11 · Quote Reply

They're just data diving - looking to confirm the conclusion they decided was "true" long ago.

Thanks for confirming, I couldn't tell if you were being sarcastic or agreeing with that conclusion.

1
Boozilla sh.itjust.works Boozilla@sh.itjust.works
Joined: 2023-06-16
#12 · Quote Reply

I really hope their general incompetence and some legal challenges make this take longer than this batshit crazy asshole has left in office. But I'm not optimistic. It's astonishing how fast this administration can move when they ignore laws and have evil intentions. Which is pretty much all the time.

4
zarkanian sh.itjust.works zarkanian@sh.itjust.works
Joined: 2024-01-11
#13 · Quote Reply

what sucks about this is we do have electronic records needs but not like this. We need a centralized database where by default only the patient and the medical provider who made the notes can view it. Then the patient should be able to log in and add medical providers to those that can view the records as they go to new ones.

It would be nice if I had a complete vaccine record so I could be sure I was up-to-date on everything.

1
HubertManne piefed.social HubertManne@piefed.social
Joined: 2025-03-13
#14 · Quote Reply

It would be nice if I had a complete vaccine record so I could be sure I was up-to-date on everything.

yeah like I never remember the last time I had tetanus. im a needlephobe so I kinda don't want to get one just in case I want to only get when needed.

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zarkanian sh.itjust.works zarkanian@sh.itjust.works
Joined: 2024-01-11
#15 · Quote Reply

yeah like I never remember the last time I had tetanus. im a needlephobe so I kinda don't want to get one just in case I want to only get when needed.

You only need a tetanus shot every 10 years. So, I just remember that if the year ends in a 4, then I need to get a new shot.

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HubertManne piefed.social HubertManne@piefed.social
Joined: 2025-03-13
#16 · Quote Reply

You only need a tetanus shot every 10 years. So, I just remember that if the year ends in a 4, then I need to get a new shot.

that just makes it worse because im not going to remember whatever thing I thought would help me remember by then.

1
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